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This
web page contains links to web sites not under our control. These links are
provided as a convenience only. The inclusion of any link does not in any way
imply or express endorsement or sponsorship, nor does not linking to a site
imply lack of endorsement.
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- Contact a Family Every day over
75 children in the UK are born or diagnosed with a serious disability or rare
syndrome and the vast majority of them are cared for at home. Contact a Family
is the only UK charity providing support and advice to parents whatever
the medical condition of their child
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- Unique is a source of
information, mutual support and self-help to families of children with any rare chromosome
disorders including deletions, trisomy, balanced translocations, unbalanced
translocations, rings, inversions, duplications, tetrasomy, monosomy, triploidy,
isodicentric, marker, mosaic, sex chromosome aneuploidy (e.g. 47,XXX 47,XYY
48,XXXX 49,XXXXY etc.) etc.
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- Genetic Interest Group (GIG) is a
national alliance of patient organisations with a membership of over 130
charities which support children, families and individuals affected by genetic
disorders.
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- Antenatal Results and Choices (ARC)
is the only national charity which provides non-directive support and
information to parents throughout the antenatal testing process. Our role is to
help parents arrive at the most appropriate decision for them in the context of
their family life.
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- Answer Our aim is to provide
information so that you can make the best decision for you and your family,
whether you decide to test, or not to test. AnSWeR cannot tell you what to do,
but this site will offer information to enable you to make the decision.
If yours is one of the
tiny minority of pregnancies which is affected by a genetic condition, this site
will offer you information to help in deciding whether to continue or terminate
your pregnancy.
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- Bacup Europe's leading cancer
information service, with over 4,500 pages of up-to-date cancer information,
practical advice and support for cancer patients, their families and
carers.
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- The Institute of Cancer
Research The
Institute of Cancer Research is one of the world's leading cancer research
organisations and is internationally renowned for the quality of its science.
Our mission is the relief of human suffering by pursuing excellence in the fight
against cancer.
The Institute is a College of the University of
London.
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These are just a few of the vast number of websites offering information on
genetic conditions. If you obtain information from the Internet about a genetic
condition affecting you or your family that you do not understand, please ask
and we will try our best to explain it to you. |

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